TESS Research Foundation

It’s the last day of #SeizureActionPlanAwarenessWeek. #SAPAW2021 WHO needs a Seizure Action Plan? All adults and children with epilepsy need a Seizure Action Plan (SAP) especially those with new-onset epilepsy and those with ongoing frequent seizures who had more than one seizure in the previous year. Everyone diagnosed with SLC13A5 Epilepsy should have a SAP. ... WHY do you need a Seizure Action Plan? Your SAP will tell people how to help keep you safe during your seizure and tell you what to do during a seizure emergency. SAPs increase knowledge and confidence around living with seizures. This is especially important for kids with SLC13A5 Epilepsy.

Happy #ValentinesDay to our entire TESS family! We love you.

Need a #ValentinesDay activity for your kids? Check out this beautiful LOVE artwork done by TESS Sibling Lily Nye. Color it in, post it and tag @tessresearch with your completed drawing! Link to download: https://www.tessresearch.org/coloring-pages/

It’s Seizure Act Plan Awareness Week. WHAT is a Seizure Action Plan? A Seizure Action Plan (SAP) contains tailored guidelines on how to respond during a seizure, based on the patient’s medical history. For children with SLC13A5 Epilepsy, seizures begin shortly after birth but often change over time, so SAPs may need to be updated frequently. #SAPAW2021

This month our February #SuperheroOfTheMonth is Yavi! Learn more about him below! Age:next month! Siblings: He has 3 sisters and 2 brothers. ... Hometown: Ridgefield, WA. Favorite food: He loves most food, but his favorite food is probably beans and rice with avocado. Favorite activity: He loves being outside playing in dirt and riding horses with his sister.

Our friends at the Child Neurology Foundation are hosting a webinar on Age Appropriate Behavior Management TODAY, February 10th, at 3pm EST. Some of the topics and questions discussed: Is it realistic to put an 18-year-old in a time out? What should you do when your 6-year-old acts out at the grocery store? We ask these questions and more in our upcoming webinar Age-Appropriate Behavior Management: Strategies to Address Difficult Behaviors in Children with Neurologic Conditions.