Stand By Eli

From our Warrior IRF2BPL Family Cassidy and Todd are two of the greatest advocates for their children. They have gone above and beyond for Caleb and their other 2 children. They are a true inspiration for myself and Behdad. I'm so sorry for what you are all going through. Prayers for the best outcome for Caleb. Our are with you So we had a meeting with the doctors and our palliative care team this afternoon and it’s the news we thought but not the news we want. Caleb’s he...alth has continued to deteriorate and his lungs just can’t keep up and he’s not stable enough for any intensive intervention. So we’ve decided to focus fully on comfort measures from now on. I feel like God sent us some peace and comfort in the big beautiful snow that started right when we were having these hard discussions. We are devastated but we are feeling at peace. https://www.caringbridge.org///id/5ff8f38b2a8eaf00013402a9 See more

Prayers of healing and peace for Caleb This poor little kiddo has been in the hospital the last 4 days due to severe respiratory distress and seizures. Caleb suffers from an IRF2BPL disorder and caring for him is super difficult at times. Please pray for him #StandByEli #IStandByEli #StandByCaleb #IRF2BPL #Epilepsy #SpecialNeeds #SpecialNeedsFamily #nonprofitorganization #ChildrensCharity #prayersforhealing #DoSomethingPositive #CareAboutRare #RareDisease #Rare #supercaleb #warriormom #warriordad

#hannukah2020 So grateful for the light in my life! #StandByEli #IStandByEli #IRF2BPL #ILoveSomeoneRare #SpecialNeeds #SpecialNeedsFamily #nonprofitorganization #ASD #Autism #IRF2BPLRelatedAutism #Epilepsy #Donate #ChildrensCharity #DoSomethingPositive #RareDisease #Rare #CareAboutRare

A HUGE, GINORMOUS THANK YOU to Polly & Mark Wolkstein for hosting our Holiday Fundraiser! Polly & Mark have been more like family than friends for us. We immediately connected 4 years ago through our boys, it was like love at first sight. They have supported us from day 1 and we are honored to call them Framily (friends that are family) We love you guys too the moon and back! @beautyblitz Thank you to all our other sponsors and vendors for supporting us and making last Sund...ay a success!! @bestfriendsbysheri @samshaker @yokoshakerchi @parisaebrahimikerendian @spotlightagncy #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #Epilepsy #Donate #ChildrensCharity #ElisAngels #SpecialNeeds #SpecialNeedsFamily #nonprofitorganization #framily #DoSomethingPositive

@yaron_abgin Thank you for donating your time! Any requests?? #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #Epilepsy #Donate #ChildrensCharity #DoSomethingPositive #Fundraiser #socialdistancing #maskssavelives #popupshop #CommunityMatters #rare #CareAboutRare #kids #dj #ShopForACause

Sunday, November 1st, 1-5pm Stand by Eli's socially distanced, out for pop-up shop. @flowertruckla will be there from 1-3. If you've never bought from them, you're going to be floored by the experience and the flowers. You won't find these flowers anywhere. Masks and social distancing enforced #ShopForACause ... #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #Epilepsy #Donate #ChildrensCharity #Fundraiser #socialdistancing #maskssavelives #popupshop #CommunityMatters #flowers #giftgiving #giftideas #holiday #brothers #SpecialNeeds #SpecialNeedsFamily #nonprofitorganization #DoSomethingPositive

Bigger is Better. Unique jewelry for everyone! Love love love her jewelry! @g.rockla #ShopForACause #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #Epilepsy #Donate #Fundraiser #ChildrensCharity #DoSomethingPositive #RareDisease #Rare #giftideas #popupshop #holiday #CommunityMatters #maskssavelives #socialdistancing #ShopOutdoors

I scream, you scream, we all scream for... tie dye!!! Nicolette Style has put fun and comfort in clothing. Visit her on Sunday #ShopForACause #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #Epilepsy #Donate #Fundraiser #ChildrensCharity #DoSomethingPositive #RareDisease #Rare #giftideas #popupshop #CommunityMatters #maskssavelives #socialdistancing

Comfort. Quality. Fashion. Welcome to @wheatkidsclothing . Sunday 11.1 In Cheviot Hills. #ShopForACause Masks required. Social Distancing will be enforced. #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #Epilepsy #Donate #Fundraiser #ChildrensCharity #DoSomethingPositive #RareDisease #Rare #giftideas #popupshop #socialdistancing #maskssavelives

A girl can never have too much jewelry. Visit @parklanejewelry this Sunday from 1-5pm. Stand by Eli's socially distant, outdoor pop-up shop in Cheviot Hills. #ShopForACause #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #Epilepsy #Donate #Fundraiser #ChildrensCharity #DoSomethingPositive #RareDisease #SpecialNeeds #rare #jewelry #giftideas #popupshop #maskssavelives

How cute are these????? @pixielanejoannataitz has what you're looking for! Check out PixieLane this Sunday at Stand by Eli's socially distant, outdoor, pop up shop. Don't forget, masks are required. #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #Epilepsy #Donate #Fundraiser #socialdistancing #maskssavelives #popupshop #CommunityMatters #ChildrensCharity #DoSomethingPositive #RareDisease #Rare #ShopForACause

Best Friends by Sheri has generously donated these amazing dog beds to Stand By Eli. 100% of profits go to the Stand By Eli Foundation. Sunday Nov 1st.1-5pm #ShopForACause #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #ChildrensCharity #DoSomethingPositive #RareDisease #Rare #dogs #cats #giftideas #comfort #popupshop #holiday #Fundraiser #socialdistancing #maskssavelives #

I'm so excited to visit @rivers.eight this Sunday! Luxury without cruelty to animals, win win! #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #ChildrensCharity #DoSomethingPositive #RareDisease #Rare #ShopForACause #SpecialNeeds #Donate #Fundraiser #socialdistancing #popupshop #giftideas #holidayshopping

Looking for a fun activity to share with your significant other, kids, friends, or even parents? @chocboxla has a complete DIY chocolate making it! And boy is it gooooooooood! See her this Sunday at Stand by Eli's outdoor pop-up shop. 1-5pm Masks &Social Distancing Enforced #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #ChildrensCharity #DoSomethingPositive #RareDisease #Rare #ShopForACause #SpecialNeeds #Donate #Fundraiser #socialdistancing #popupshop #giftideas #chocolate #DIY

#LoveThatBling Find a gift for someone special and grab one for yourself. Visit @mdjewelers this Sunday at Syand by Eli's outdoor pop-up shop. 1-5pm Masks & Social Distancing Enforced #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #ASD #ChildrensCharity #DoSomethingPositive #SpecialNeeds #RareDisease #rare #giftideas #popupshop #maskssavelives

Find the perfect gift by @gifted.la this Sunday at Stand By Eli's outdoor pop-up shop. 1-5pm Masks & social distancing enforced #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #Epilepsy #Donate #Fundraiser #socialdistancing #maskssavelives #popupshop #CommunityMatters #ChildrensCharity #personalizedgifts #holidayshopping

Have you seen her cheese boards? Amazing!!! Come visit @nicoleskitchenla this Sunday at Stand by Eli's outdoor pop-up shop. 1-5pm Cheviot Hills. MASKS & SOCIAL DISTANCING ENFORCED #StandByEli #IStandByEli #IRF2BPL #ILoveSomeoneRare #SpecialNeeds #Eli #Fundraiser #Donate #ChildrensCharity #CommunityMatters #rare #CareAboutRare #giftideas #holidayshopping #masks #socialdistancing

@flowertruckla x @stand.by.eli Sunday Nov 1st, Cheviot Hills #StandByEli #IStandByEli #IRF2BPL #NEDAMSS #Epilepsy #Donate #Fundraiser #socialdistancing #maskssavelives #popupshop #flowers #giftgiving #ChildrensCharity #DoSomethingPositive #RareDisease #CareAboutRare #kids #SpecialNeeds #warriormom #WarriorDad