National Organization for Disorders of the Corpus Callosum

$10 flash sale on DCC Awareness Day shirts!! Order by June 23 to receive before July 2 (US only). https://nodcc.org/product/world-dcc-awareness-day-tshirt/

DCC Awareness Day is just over 2 weeks away! Learn how you can get involved in this year's activities including a photo slideshow, summer online auction, and the Cortical Connections (Online) Conference with researchers ending with a global celebration on July 2. Visit our website page for more info and watch for the emails! https://nodcc.org/conferences-and-events/dcc-awareness-day/

Our adults with DCC series continues on the blog with Veronika’s story. Read how this shining star has accomplished so much in her young life and how she found the right fit with her career. https://nodcc.org/meet-veronika-breaking-barriers-living-w/ #livingwithdcc #propertymanagement #nodcc

It's the summer travel season as schools are out or nearing the end of classes. There has been a lot written about traveling with a child with special needs, and we like this guidance from mom and autism advocate Lisa Jo Rudy in Verywell Family: https://www.verywellfamily.com/vacation-with-special-needs-. Share your tips in the comments or tell us if you have any travel plans this summer!

Tomorrow is the final day of the extended deadline to apply for a (summer) grant through the Olam's Piggybank Grant Program. If an adaptive device or technology will help your DCC loved one, apply today! https://nodcc.org/resources/grants/

Two-year-old Cass has agenesis of the corpus callosum, is completely blind, has seizures, and has severe heat intolerance. One of his biggest challenges is the heat intolerance and the inability to go into the world because his body temperature cannot be regulated. Cass received a battery-powered ice therapy system through Olam’s Piggybank Grant Program, and the results have been life changing for the family. Keep having fun Cass! We have extended the deadline to apply for a summer grant until Friday, June 4. For the application and information on eligible and non-eligible items, click here: https://nodcc.org/resources/grants/

Don’t forget to register for the virtual presentation this week. Tiers of Friendship (Open to All) Tuesday, May 25, 2021 4:00 pm PST / 5:00 pm MST / 6:00 pm CST / 7:00 pm EST... Tiers of Friendship, is about learning how to navigate the social world and build a healthy social structure, developing social connections with friends, co-workers, and school. This session, presented by Elisabeth Martinec, is great for parents and adults with DCC. Elisabeth is the oldest sibling to an adult with complete agenesis of the corpus callosum. She has a degree in education. Beth currently lives in Arizona and works as an interior designer that specializes in kitchens. https://nodcc.org/virtual-community-calls/

Thinking about applying for an Olam’s Piggybank Grant? Watch Steve and Orly Rumberg share how assistive devices helped their son, Olam, become more independent and why it was important to them to provide grants to help other families. Learn more about the grants and apply here: https://nodcc.org/resources/grants/ https://youtu.be/vuVFG6IuDug

We celebrate moms this weekend! Our organization was created thanks to the moms and women who persistently pursued information to help their children and many others. Two of those women a mother and a researcher are featured in this founding story video. We appreciate the moms who got us here and the many moms who continue to help others on their journeys. #mom #mothersday2021 #specialneedsmom #livingwithdcc #NODCC https://youtu.be/E86jsy-bMwk

Adaptive bicycles have been a popular item requested through Olam's Piggybank Grant program. These bikes help give younger children and older kids the freedom to experience the joy of riding! Apply this month for support with adaptive devices and technologies that can improve the life of your loved one living with a DCC. https://nodcc.org/resources/grants/

Don't miss this special presentation on May 20! Special needs trust attorney, Tresi Moore Weeks, presents how you can plan for your child’s future and gain peace of mind knowing your child will be cared for. Topics include: -- Basics of government benefits (SSI/Medicaid) and eligibility requirements -- How to leave an inheritance to your child without losing benefits -- Special Needs Trusts overview -- Types of special needs trusts and when to use them... -- Leaving life insurance and retirement accounts to a special needs trust -- What the trust funds can be used for -- And more! Visit the Virtual Community Calls page in the News section of our website for more information and to register: https://nodcc.org/virtual-community-calls/

The summer grant cycle for Olam's Piggybank Grant Program is open! Twice a year, the NODCC awards grants for assistive devices and technologies for children and adults living with a disorder of the corpus callosum. Review the eligible/non-eligible items and apply today! https://nodcc.org/resources/grants/

On the blog, parent and writer John Will shares a piece that many parents who receive an unexpected diagnosis for a child will be able to relate to. It's also a good reminder to find the inspiration in the little things. #livingwithdcc #specialneeds #diagnosis #parenting https://nodcc.org/conversations-in-parenting/