International Myeloma Foundation
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General Information
Locality: North Hollywood, California
Phone: +1 818-487-7455
Address: 12650 Riverside Drive, Suite 206 91607 North Hollywood, CA, US
Website: www.myeloma.org
Likes: 129229
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Watch This Webinar Primer for Newly Diagnosed Myeloma Patients and Their Caregivers In this webinar, IMF Chairman of the Board Dr. Brian G.M. Durie explains that myeloma is treatable and requires baseline testing. He discusses important myeloma-related terms, how to assess treatment response, the role of triplet therapy, the pros and cons of undergoing an autologous stem cell transplant, the role of maintenance therapy, and the importance of caregivers. https://bit.ly/3eR2put
Phase 1 Study of CART-ddBCMA, a CAR-T therapy utilizing a novel synthetic binding domain, for the treatment of subjects with relapsed and refractory multiple myeloma. Dr. Matthew J. Frigault (Massachusetts General Hospital, Boston, MA, USA) explains the methods and objective of this study. https://bit.ly/3gBKw2w
The #MyelomaMinute is out! This week we feature a new Myeloma Voices episode, online learning opportunities, and Dr. Durie answers a patient's question. Read and subscribe! https://bit.ly/3ydSjeY
The Hatfield Hike continues! Bill and Huckleberry continue their fundraising adventure along the Appalachian Trail. https://bit.ly/3pY315w
#Nurses! Join to hear a free CNE case study about Bianca, a 66-year old African American with multiple myeloma who experienced delayed diagnosis in CASE STUDIES IN MULTIPLE MYELOMA CARE FOR CHALLENGING TIMES PART 1 http://bit.ly/IMFONS1
"Living Well with Myeloma" Webinar on Nutrition We are all hearing about how critical the immune system is for our overall health. What is the immune system and how can we protect it? Can nutrition improve your immune system for better defense against diseases, bacteria, or viruses? Can supplements help? https://bit.ly/3oh3LSC
Today Is International Nurses Day. Pictured here are members of the IMF's Nurse Leadership Board. Today, we honor the NLB, and nurses worldwide, for their work on the frontlines of patient care! Did you know that nursing professionals can earn CNE-credit: https://bit.ly/IMFOSA1
Our InfoLine team is here for you. If you have myeloma related questions or concerns, please get in touch. https://www.myeloma.org/infoline
Enjoy Happy Hour with Phil Rosenthal of "Somebody Feed Phil" via Zoom!! Place your bid between now and November 5th! https://bit.ly/2Gd2NFi #somebodyfeedphil
We hope that you enjoyed the "Everybody Loves Raymond" cast reunion last Friday night. The reunion was held in memory of Peter Boyle, who played Frank Barone on the show. Peter lost his life to multiple myeloma. Your donation goes to the Peter Boyle Research Fund, which supports the IMF's groundbreaking research to cure and prevent multiple myeloma. We're getting close to a cure. Help us continue our groundbreaking research by making a donation now.
The International Myeloma Working Group (IMWG) New Risk Stratification Model for Smoldering Myeloma Will Reduce Risk of Disease Progression and End-Organ Damage The landmark IMWG paper, published in Blood Cancer Journal, identifies patients with high-risk smoldering multiple myeloma who are candidates for early therapy and clinical trials. https://www.prnewswire.com//the-international-myeloma-work
This week’s Ask Dr. Durie is the big ongoing question for the majority of myeloma patients, which is: With the COVID-19 pandemic, what does the future hold? Well, I think unfortunately, through these upcoming winter months, the COVID-19 pandemic is going to continue to be with us. And, also unfortunately for myeloma patients, it will be a little bit of time until we know if any of the vaccines in development will work well for myeloma patients who are mostly a little b...it more elderly and obviously, do have a compromised immune system. The good news, however, is that if a COVID-19 infection does occur, we are learning a lot more about how to better manage the disease. And, for example, the myeloma treatment dexamethasone does in fact work to improve the lung problems in patients with COVID-19 infection. And so, if God forbid, someone is hospitalized with COVID-19, we are better able to get them better, and to avoid the use of a ventilator, and to get these people out of the hospital. So, this is really, really, the good news. However, there is no doubt that in the short term the use of masks, physical distancing, and avoiding crowds and indoor spaces is really, very, very important. And that will continue to be the case through the winter months and into the new year, I’m pretty sure. And so, BOTTOM LINE: It is still essential to try to stay safe. And with these measures, with the masks, and distancing, and the like, it is possible to stay safe. That is the good news. The only additional thing that I strongly emphasize is that, since you’re mostly staying home and no getting together with many family and friends. Social networking, in some fashion, is really, really, important to try to stay sane, and to maintain some connection, and really get by in the best possible way day to day. So, please physically distance, but socially network. https://www.myeloma.org//covid-19-faq-23-pandemic-continue?
Between now and November 5, here is your chance to bid on a custom outgoing voicemail recorded by Patricia Heaton plus #EverybodyLovesRaymond autographed memorabilia. Check it out! https://bit.ly/3kFEG0I
Download the New Understanding Darzalex Faspro Booklet for Free! Darzalex (daratumumab) is the first FDA-approved monoclonal antibody that targets the CD38 protein on the surface of myeloma cells. The original formulation of Darzalex is administered as an intravenous infusion, and the FDA has also approved Darzalex Faspro (daratumumab + hyaluronidase-fihj) as a subcutaneous injection. Both formulations are available as monotherapy and as part of combination therapies. https://bit.ly/2Hz1HnG
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