McKenna Claire Foundation

Fact Friday: These statistics are horrific, and they haven’t changed in decades. Imagine watching your child slowly lose the ability to walk, talk, see, hear, swallow and breath....all while being cognitively aware. And as a parent being told that there is absolutely nothing you can do. It’s a pain beyond description, and the reason we continue to fight. Help us Shine a Light on the need for effective treatments by sharing these statistics. ***Thank you to our friends at Defeat DIPG for the graphic

Proud to support Dr. Michelle Monje and this dream team at Stanford, both through direct funding of Monje Lab and our collaborative work with St. Baldrick’s The 2021 award honors a group known as the St. Baldrick’s Foundation-Stand Up 2 Cancer Pediatric Cancer Dream Team, composed of 74 scientists at nine academic institutions. The team conducts basic, translational and and clinical research at the intersection of immunotherapy and cancer genomics for many types of childhood... malignancies.... The association’s award announcement notes that the team has published 183 manuscripts, submitted 21 patent applications, created a new clinical trials network and generated more than $90 million in research funding. The group has also treated more than 950 children in early phase clinical trials, with many experiencing lasting and complete responses. https://news.stanford.edu//team-science-award-recognizes/

Throwback Thursday to Party With a Purpose 2013 - Cinco De Macky! So much as changed since throwing these relatively simple, daytime, family-friendly, outdoor parties. Macky’s friends will be graduating high school this year, while the others are in college. The event has grown and morphed to a themed, night-time extravaganza. We have learned so much in the past 8 years - both about running a foundation and about DIPG/pediatric brain cancer. And in that time you have helped raise over $4 million dollars for research! But one thing hasn’t changed. We still don’t have a viable therapy for DIPG - the one that will give children HOPE. We hope you’ll stick with us in the year(s) to come, attend our events, and help us raise awareness and funding for this horrific disease. YOU are the key to HOPE.

May is Brain Cancer Awareness Month. Please consider changing your profile picture feature a brain cancer warrior like McKenna, or use one of the many profile frames provided by our friends at other foundations like Chad Tough/Defeat DIPG or Pediatric Brain Tumor Foundation. Small actions can lead to big changes. Awareness=Funding=Cure!

May is Brain Tumor Awareness Month. People often ask, What can I do to help? Here is a simple way to make an difference. Read my friend Danielle’s post (her son Mason is pictured) and click the link below to contact your representatives and tell them brain cancer research is important to you! Why do I #Head2Hill with National Brain Tumor Society? So no family has to live with just photos and memories. So we do not watch our loved ones suffer. So research funding can create cures and quality of life. Join me in contacting your Member of Congress- it is simple easy and takes 5 minutes of your time. http://p2a.co/HsWGJZi In honor of Mason and so many others help make brain tumors a national priority - take action today!