Living with XXY

We just created a new way for our community to get involved with us and share your stories on all of our social media networks. If you are interested take 5 minutes to find your favorite photos and videos and fill out this easy form! Thank you!

Aaron is 8. We were told we could determinate the pregnancy. So glad we did not. He is the best kid ever. He loves sport and playing outside. He is so caring and sweet #getoutside #livingwithxxy #xxy #klinefeltersyndrome #XXYawareness #nonprofit #travelblogger #genetics #KScommunity #XXYcommunity #47xxy #chromosomecutie #extrachromosome #Homiewithanextrachromie #geneticist #makingadifference #smile

Just now I had an incredible experience that really makes me incredibly happy and touches my heart. A family from Colombia who has a 2 year old son with xxy found us on google. The moms brother, wife and daughter came to my home to deliver a beautiful hand written note as well as real Colombian coffee to say thank you. This community is growing all over the world and we are touching so many people. I am truly grateful to be able to experience this love. #livingwithxxy #speechless #makingadifference #love

Our newest podcast is now live. Our XXY Mom Squad introduces Carson to our amazing community. This is one we recommend all families take the time to listen to. In our final episode of season 1, Carson talks about her son LJ and everything she had to do to get her son early intervention. Which would eventually lead to a Klinefelter syndrome/47 XXY diagnosis. Carson started to notice her son's gross motor skill delay at 4 months and at 10 months old he had... the gross motor skills of a 5-month-old. LJ just reached a huge milestone at 18 months on the day of this podcast recording. Carson talks in-depth about advocacy, awareness, and the reason she is speaking up about LJ's diagnosis. #Livingwithxxypodcast #podcast #livingwithxxy #xxy #klinefeltersyndrome #XXYawareness #nonprofit #travelblogger #genetics #KScommunity #XXYcommunity #47xxy #chromosomecutie #extrachromosome #Homiewithanextrachromie #endocrinologist #geneticist #makingadifference #awareness #volunteer #donate #smile See more

Happy Valentine’s Day! Sending hearts and smiles to our whole community today! #livingwithxxy