Jordan's Guardian Angels

Dear PPP Community, please join us in keeping sweet Ozzie and his family in your thoughts and prayers this week. Ozzie and his family are part of our PPP family and have led the way in strength, love, and acceptance in a rare journey.

Repost from our friends Patient Worthy #inclusion #acceptance #friendship

Huge Congratulations to our Poppy for placing first in her horse riding competition! Her grandmother pointed out that the words on the ribbon are so true of Poppy's personality :)

Just before the end of 2020 JGA was able to reach an agreement with a company named Synthego to provide our research team with allelic series (or series of different variants) of many of the PPP2R5D, PPP2R1A, and PPP2R5C variations. These copies will significantly streamline the research efforts to further help our children!

Happy birthday to our dear friend Giorgio! May your year be filled with fun and blessings! Luca Belloni

Happiest of Birthdays to our always smiling friend, Daniel!!! Daniel's mom, Jessica, says Daniel continues to surprise her daily. "He is so happy! His smile lights up a room, and we are so incredibly proud of him and the progress he has made. I can't believe my forever baby will be 3! Watching him grow is bittersweet, and I know he will continue to amaze and inspire us. He brings joy to everyone and he's truly a blessing. My miracle rainbow baby."

"If you want to be a better friend to people with disabilities, start by listening to what they have to say!"

Happy fourth birthday to the man, the legend, the guy with the best humor- Our friend, Cash! Holly Snell Virgil Snell

This is why you should #CareAboutRare, and share information about rare diseases to spread awareness! #JordansSyndromeAwareness

Meet our Angel of the Week, PhD student Sara Reynhoutnolds from KU Leuven! Thank you for your dedication to unlocking the mysteries of Jordan's Syndrome! KU Leuven #AngeloftheWeek #JordansSyndrome

JGA is so excited to have our very own Jordan's Syndrome mama, Carole Bakhos, featured in Everylife's March Newsletter! Click on the link below to hear Carole's Open Mic! https://vimeo.com/524129158

Did you know April is Autism Awareness Month? Many of our individuals diagnosed with #JordansSyndrome also have an Autism diagnosis. This month make the commitment to learn a bit about Autism- let’s #lightitupblue Autism Speaks

It's our friend Emmett's 12th birthday!! Hope 12 is the best year yet (:

Save the Date! Next Thursday and Friday, January 28th and 29th Kendra Scott is hosting an online Valentine's Day Fundraiser for Jordan's Guardian Angels! 20% of all purchases will be donated to JGA when you enter the giveback code! Visit https://kendragivesbackjga.splashthat.com/ to receive reminders and get the giveback code

Join us in wishing our beautiful Arianna a happy birthday!! @Jesse Farmer

Join SPARK for Autism and Dr. Wendy Chung at the Ask Me Anything Webinar on January 27th, 8 PM EST. Link to sign up at https://simonsfoundation.zoom.us//WN_BiY5pJhYSrOFBc3iZZFXEw

Look at Michal working on her motor skills! We love her happy face when she gets to the top!! You go girl! #ActuallyICan Gali Avni Keren Naftali Avni

From Veerle Janssen's lab in Belgium- Our first PPP2R1A mice! #ResearchDreamTeam

Join us in wishing our Logan an amazing birthday! Enjoy your day Buddy!

Introducing Our Angel of the Week- Priyanka Sandal Verlani ! Priyanka is a Post Doc Research Scholar in Strack Lab at the University of Iowa, specializing in the enzymatic characterization of #JordansSyndrome mutations. Thank you Priyanka for joining our journey of hope.

Happiest of birthdays to our friend George!! We hope this next year is filled with fun adventures! @Emma Crofskey

Join us in wishing our friend Tom an amazing 20th birthday!! Sophie Berry

Happy 26th Birthday to our wonderful Adeline! Have the most amazing day! Adeline Esdale

Happy Halloween Friends! Hope your day is absolutely SPOOKtacular!

We are so excited to share that a new paper on #PPP2R1A has been published! Read the latest from the top PP2A researchers (including our own Dr. Veerle Janssens!!) here:

Feliz Cumpleaños Carlos!! Join us in wishing this handsome man a fabulous third birthday! Noelia Izpe

We did it!! Our first virtual event raised over 30K- thanks to you!!

AND THE $1000 AMAZON GIFT CARD WINNER IS.......... Aaron Reimann!! Congratulations Aaron!! Thank you for supporting the Deaton family and team JGA! Gina Deaton Ben Deaton

Missed the premiere of Calling All Angels? You can catch up at www.jordansguardianangels.org !