HealingHugs4Sebi

Please see our video KHTS did for us! We need your help! donate at www.CureBattenCLN8.org

Sebastian’s new Light Gate Walking therapy at Henry Mayo Hospital! Helps with balance, walking straight! Did awesome! Batten clinic at Children’s in Ohio recommended he needs to do this to keep strong until gene therapy!

More tests at UCLA for Sebastian. Swallow study... really hate Batten disease! But love proving to them he is strong!

Sebastian’s therapies are really paying off! He is stronger than most! Amazed how hard he works! Thank you dear friend Kristin Borland and Melissa for having big hearts and helping him! www.CureBattenCLN8.org

Wanted to share a beautiful post that was so kind from our friends Brad Scarpetta and Christina Scarpetta! Their son Brock has batten disease CLN8 and we’ve been working hard together to get our boys to gene therapy treatment! Brock is a very sweet boy! Love you guys!!!! www.CureBattenCLN8.org

My amazing friend Dr. Kat, who makes gene therapy and her team! Long few days of testing, scans! Amazing work they do and create Miracles! Can’t post pics from inside clinic or labs, but it’s amazing! Mind blowing work! Loving Children’s hospital and Columbus, Ohio! They LOVE Sebastian! Another long day of ophthalmologist appts, then we fly home!

Children’s hospital Batten Disease clinic! We made it!