Alport Konnect

Join Us To Learn More! Register Now: https://bit.ly/2P7suew It’s Free,Virtual,Global and Open to the Public!

Want to Learn More? Register Now: https://bit.ly/2P7suew It’s Free,Virtual,Global and Open to the Public!

National Kidney Month | UCLA CORE Kidney Health Virtual Conference: https://uclahs.zoom.us/w/register/WN_ZgPWycdXR_OXq26FbQZp4A

It is Rare Disease Day!! Today, we raise awareness for the 300 million people living with one or more of over 6,000 rare diseases worldwide. The UCLA CORE Kidney Health Program provides comprehensive care to patients with rare diseases, such as Fabry's Disease, ADPKD, and Alport Syndrome. To learn more, visit us at:

Welcome to the Alport Konnect Page! We are dedicated to spreading awareness from Alport Syndrome! We offer comprehensive care for Alport Syndrome through a team approach that includes collaboration among specialists in nephrology, pediatrics, genetics, ophthalmology, otorhinolaryngology, radiology, transplant, dialysis, psychiatry, social work and patient advocacy.

Happy Anniversary, Andy Greene!! Thank you for the gift of life Read Andy Greene’s Story: On August 2016, Supervising Deputy Probation Officer Andrea Greene ...ran into a colleague Hermina Ban, a Children Social Worker (CSW) from the County’s Department of Children and Family Services (DCFS), who and after a brief conversation, mentioned that she had a friend, who had been on dialysis for five years and was on a 10-year long waiting list for a kidney transplant. Ms. Greene wondered why no one had come forward to help. Surely there was a friend or family member who could donate. As it turned out, the friend had a rare blood type. Type O Negative is known as the Universal Blood Donor blood type because the blood cells can be transfused into almost any patient in need. Less than 7% of the world’s population has this unique blood type. Andrea Greene is a member of that exclusive group. This is when fate enters in. I always felt that I would donate something, someday, and this was my chance to fulfill that, Ms. Greene stated. After applying to the UCLA Living Donor Program and completing several days of testing, it was determined that Ms. Greene was a good match for kidney transplant surgery. She underwent successful surgery on February 15, 2017, and returned to work a month later, on March 15th. March is National Kidney Month, a time when the National Kidney Foundation urges all Americans to visit their doctors for a well-deserved kidney checkup. According to Ms. Greene, her decision to donate one of her kidneys came from a genuine desire to help otherssomething she believes most others share. Greene expressed. I felt that this was a way to make a difference in a way I know for sure. Fast forward 2021: Ms. Greene has continued her journey and is a member of the Circle of CORE under the UCLA CORE Kidney Health Program. The Circle of CORE is a patient advocacy group where all members are living kidney donors and recipients who were inspired post-transplant to give back to the community. The Circle of CORE is always available to support other patients and families through their journeys, to educate and empower them on the challenges with kidney disease. Andy has been heavily involved with the Circle of CORE and continues to make a difference in many people’s lives! See more

Happy New Year!! Wishing you all the best in 2021

Thanking all our organ donors and Circle of CORE on National Organ Donor Day Don’t miss our premier annual event on March 21st Patient Conference where we will have a major discussion on transplantation and organ donation

Happy Thanksgiving and many blessings to all

We are very grateful to you and your families for your service and sacrifice

Happy Nurse Practitioner week The CORE Kidney Family appreciates all of you

Sharing article on Home Dialysis in LA Times https://www.latimes.com//to-evade-covid-19-dialysis-patien Patient drives all the way from Santa Maria, CA for her peritoneal dialysis care at Century City!!