Adenoid Cystic Carcinoma Organization International

It's Fact Friday Don't forget that October is Breast Cancer Month. While only 12% of ACC patients are diagnosed in the breast, in general breast cancer is the most common cancer among women (other than skin cancer). ... Having ACC does not exclude you from more common forms of cancer. Depending on your age and cancer history, make sure you're being screened for early detection.

Just imagine turning on the lights and tricking the cancer .... One day. https://www.facebook.com/ScienceNaturePage/videos/2663647700425542/

Monday's Message

Proton radiation can provide a number of unique benefits for head and neck cancer patients. But it's not available in many parts of the world. Now, a team of researchers are working on the first proton beam therapy clinical trial in the UK for adults with oral cancer. https://news.cancerresearchuk.org//could-proton-beam-ther/

It's Fact Friday: The lacrimal gland, which makes your tears, is in the upper outer quadrant of your orbit (under the eyebrow). Adenoid Cystic Carcinoma of the lacrimal gland tends to be diagnosed in younger patients and is very rare even for ACC. Treatment continues to be controversial which can depend on the grade, staging and perineural invasion. It's imperative to have a knowledgeable and highly skilled physician.

You can help find a cure for adenoid cystic carcinoma (ACC). If you or a patient you know has an upcoming surgery, please consider donating a tumor sample. Ask your surgeon about a tumor donation or visit www.pattern.org and they'll help you get started with a consent form. It's free, won't interfere with your treatment, and maintains your privacy. Just watch here. https://youtu.be/UA04-R-D7_Q **Currently, only patients being treated in the US are eligible

It was a selfie that saved Kate Mathis life when diagnosed with adenoid cystic carcinoma. For about five years, Kate Mathis noticed that every time the weather changed her ears would begin to hurt. Then, she noticed some jaw pain followed by a bit of numbness... https://www.youtube.com/watch?v=KbtTE_M4_Ag&t=26s

Today is #RareCancerDay, a day devoted to raising awareness about rare cancers. The goal is to raise critical awareness of rare cancers and the need for greater research and patient support. Share the facts, share your story or consider creating a Facebook fundraiser to bring awareness to those with adenoid cystic carcinoma. Click here to start your fundraiser https://www.facebook.com/fund/accoi/