UC Davis Huntington's Disease Center of Excellence

https://www.prilenia.com/pridopidines-neuroprotective-prope Prilenia Therapeutic's most recent press release regarding their PROOF-HD clinical trial.

Join us NOW (10am PST) for our HD Family Education Day!!!! With Dr. WHeelock, Dr. Duffy, Becky Craig & Max Moon.

Please join us for the 2021 VIRTUAL Family Education Day Saturday, May 8, 2021 10:00am 12:00pm Registration is required (see below)... 10:00am 10:10am: Welcome Dawn Green, President, HDSA Northern California Chapter 10:10am 11:30am: Research update: Vicki Wheelock, MD, Director of HDSA Center of Excellence @ UC Davis Health Sasha Duffy, MD, Movement Disorder Neurologist at UC Davis Health Becky Craig, MSHS, Research Coordinator at UC Davis Health 11:30am 11:45am: Advocacy: Max Moon, Board Member, HDSA Northern California Chapter 11:45am 11:55am: About HOPES: Lauren Hinkley, Board Member, HDSA Northern California Chapter 11:55am 12:00pm: Closing Questions? Contact: Lisa Mooney ~ [email protected] ~ 916-734-6277 https://hdsa-org.zoom.us//tJ0vc-6hrTwqHdLadtmrsvlsuKeBys7g See more

Join us for a FREE Education TOMORROW!!!!

Join us for a FREE event about the Lifespan of HD and getting support each step of the way!

The Journal of Huntington's Disease has recently published a review of findings out if the University of Iowa on the Neurodevelopmental Hypothesis of HD. A full press release with an overview of their findings can be found at bit.ly/JHD9-3_PR1 These findings come from the Kids-HD Study, which recently evolved into the ChANGE HD Study and expanded to 5 sites nationwide, including one at UC Davis! For more information about how you can participate, contact Talia Hamm at [email protected]

Looking for more COVID test and vaccine information.

Happy Holidays to our HD community and beloved HD families! This year has been challenging in many ways both collectively as a community and as individuals, we miss seeing you all in person, but hope you are all doing well -- whatever that looks like for you and your family! On behalf of the HDSA Center of Excellence at UC Davis HD team we want to wish you all a Happy, Healthy and Safe Holiday season. May this post bring you a smile . Cheers, as we all ZOOM () into 2021! Thank you to Meriah Horton @ UC Davis Dept of Neurology for her creativity and holiday neurons.

Children, adolescents and young adults who are at-risk for Huntington’s Disease are invited to participate in a brain imaging study at the UC Davis Medical Center. Participants are eligible if they are 6-30 years old and have a parent or grandparent who has been diagnosed with Huntington’s Disease. For more information contact study staff at 916-891-1233 or email [email protected]!

We want your feedback on HD Virtual Education! Only takes 3 minutes, thank you in advance for your time and feedback. https://www.surveymonkey.com/r/NorcalEducation

Northern California HDSA Family Education Day starts in about 20 minutes, please join us!!!!

Support Group TONIGHT (8/26) @ 6:30pm for any HD Family members living in San Joaquin, Alpine, Amador, Calaveras, Stanislaus, Tuolumne, Mono, Mariposa, Merced, San Benito, Monterey Madera, Fresno, Kings, Tulare and Inyo counties: We hope you will join us!!!!

ANY and ALL HD Families in San Joaquin, Alpine, Amador, Calaveras, Stanislaus, Tuolumne, Mono, Mariposa, Merced, San Benito, Monterey Madera, Fresno, Kings, Tulare and Inyo counties: We have a NEW Central Valley and Central Sierra Support Group, just for YOU!!! This group is open to all HD persons, At-risk, Spouses, Care providers, siblings, adult children, etc. 1st Meeting is August 26th @ 6:30pm. Please register at this link:... https://hdsa-org.zoom.us//tJwscuuuqTsoGtzEGYl5teG9VUQ0cmSE See more

Join us for Family Education Day!!!! Research updates, advocay and Behavioral and Cognitive Panel. You don't want to miss it. Please join us Aug 29th @ 10am (PST) for HD. Registration is required to get the link to join. https://hdsa-org.zoom.us//tJwvfuuorjIiHNYDvMytDzyTTVAfo3vJ After registering, you will receive a confirmation email containing information about joining the meeting. Planned Agenda: ... 10:00am Welcome Dawn Green, President, HDSA Northern California Chapter 10:10am 10:45am: Research update Vicki Wheelock, MD, Director of HDSA Center of Excellence @ UC Davis Becky Craig, MSHS, Research Coordinator Talia Hamm, BA, Research Coordinator 11:00am 11:30am: Advocacy Lisa Mooney, LCSW, Social Worker Max Moon, Board Member, HDSA Northern California Chapter Cole Holderman, Secretary, HDSA SF Bay Area Affiliate 11:40am 12:25pm: Managing Behavioral and Cognitive Symptoms Suketu M. Khandhar, MD, Medical Director, HDSA partner COE, Kaiser Sacramento Michel Medina, MD, Neuropsychiatrist Kimberly Lanni, PhD, Neuropsychologist 12:25pm 12:30pm: Closing See more

Call all Northern California Care Partners Please join us for the CAREGIVER ONLY video support group TONIGHT 8/18 @ 6:30 pm. We hope to see you there!!!

Meet Talia! Talia will be the site coordinator for ChANGE HD at the UC Davis Medical Center. She has worked for several studies with children and young adults and is excited to work with families for ChANGE HD. Talia may be contacted at [email protected] or 916-891-1233.

Sonoma, Napa or Solano county, HD FAMILIES please join the Santa Rosa Support Group, next meeting August 10th @ 6:30pm. See the registration link to get signed up. Registration is required!!! https://hdsa-org.zoom.us//tJYqf-uspjgpHdwKenmGaoLJ-1gxSU9s Santa Clara, San Mateo or Santa Cruz county HD FAMILIES please join the Palo Alto group, next meeting August 11th @ 7pm. New and Existing members must ALL register ONE time to join the monthly meeting. See the registration l...ink to get signed up. Registration is required!!! https://hdsa-org.zoom.us//tJApf--grTgiGNBykU1jEZbPCkoFrYSg Sacramento, Yolo, Placer and El Dorado county HD FAMILIES please join the Great Sacramento Area group, next meeting August 12th @ 7pm. New and Existing members must ALL register ONE time to join the monthly meeting. See the registration link to get signed up. Registration is required!!! https://hdsa-org.zoom.us//tJwqfu-srjwqHNB1ybvLTqSem4tLtN0Y

You are INVITED to the NEWLY Expanded Northern California/Bay Area HD Support Groups. All support groups are VIDEO until further notice. This expansion ensures that all Northern California/Bay Area counties have a local virtual HD support group. 2 of the 8 groups are exclusive for persons caring for HD loves ones. Therefore the remaining 6 are open to all members of HD families, including HD persons. Join today!!! Santa Rosa Support Group: For All HD family members i...n Sonoma, Napa, Solano: Register in advance for this meeting: https://hdsa-org.zoom.us//tJYqf-uspjgpHdwKenmGaoLJ-1gxSU9s Palo Alto Support Group: for ALL HD Family Members in Santa Clara, San Mateo, Santa Cruz. Register in advance for this meeting: https://hdsa-org.zoom.us//tJApf--grTgiGNBykU1jEZbPCkoFrYSg Greater Sacramento Area Support Group for ALL HD Family Members in Sacramento, Yolo, Placer, El Dorado. Register in advance for this meeting: https://hdsa-org.zoom.us//tJwqfu-srjwqHNB1ybvLTqSem4tLtN0Y Mill Valley Support Group for ALL HD Family Members in Marin, San Francisco, Alameda, Contra Costa. Register in advance for this meeting: https://hdsa-org.zoom.us//tJ0ld-CopzgqE90HjdFp8rmG9zJA-m29 (NEW) Care Partner Support Group for spouses, adult children, siblings or other family members caring for HD loved ones. Serves all Northern California Counties. Register in advance for this meeting: https://hdsa-org.zoom.us//tJErdOisqj8sGd1JSVmqRKSR7ohFQITg (NEW) Shasta Cascade & North Sierra Support Group: for all HD Family Members in Del Norte, Siskiyou, Modoc, Humboldt, Trinity, Shasta, Lassen, Mendocino, Lake, Tehama, Plumas, Glenn, Butte, Colusa, Sutter, Sierra, Nevada & Yuba. Register in advance for this meeting: https://hdsa-org.zoom.us//tJIrfuGpqDMtEtXt75GNA0Zhp9P2t7Wu El Cerrito Support Group: for Care Partners in Contra Costa and Bay Area. Register in advance for this meeting: https://hdsa-org.zoom.us//tJwrdOuuqj8rH93QxkEF5hleUkUpZ2yu (NEW) Central Sierra & Central Valley Support Group for all HD Family Members in San Joaquin, Alpine, Amador, Calaveras, Stanislaus, Tuolumne, Mono, Mariposa, Merced, San Benito, Monterey, Madera, Fresno, Kings, Tulare, & Inyo. Register in advance for this meeting: https://hdsa-org.zoom.us//tJwscuuuqTsoGtzEGYl5teG9VUQ0cmSE

Come join us Help 4 HD and Part of the UC Davis Care Team on Saturday for some HD education and connection (virtually of course!)