NF California

When parents first hear the word "neurofibromatosis," thousands of thoughts and questions begin to race through their heads. The NF Network is proud to present ...a Neurofibromatosis Parent Panel to facilitate an open discussion and answer your questions about neurofibromatosis. As parents of the neurofibromatosis community, this parent panel brings together parents with different backgrounds of NF. Whether you are an NF2 parent, a multi-generational NF parent, or an NF1 parent, our panelists will provide insight, share tips and tricks, and talk about their experiences with their children with NF. Sign up and join us Wednesday, September 16th at 7:00 PM CT for this free educational webinar! Register now: https://us02web.zoom.us//register/WN_tPXhdaeNQT22tm-UPCzWzQ

We are warming up our acting skills and getting ready for our first Teen Game Night with the NF Network next Wednesday, August 19th! Join teens and young adults... in our NF community from across the country in a fun game of charades before summer comes to an end. Learn more and RSVP here: www.nfnetwork.org/teen-game-night/

Stay iNFormed and catch up on the NF Network webinar series! Watch recordings on our website at www.nfnetwork.org/resources/webinars/ and get the latest information from top professionals in their fields! Closed captioning is available via YouTube.

On Memorial Day, we honor the sacrifices made by our nation's heroes. The NF Network will never forget and will honor them forever.

It's World NF1 Awareness Day! Neurofibromatosis is a genetic disorder that causes tumor growth on nerve-endings throughout the body. It has 3 distinct types - N...F1, NF2, and Schwannomatosis. On May 17th, we celebrate NF1 Awareness Day in recognition of NF1 gene, located on the 17th chromosome. Today we celebrate our NF heroes, fighters, warriors, and NF friends, family, and supporters around the world, because together we're #NFStrong! Celebrate with us and share your hope for NF using the hashtag #MyHope4NF1, or send your personal NF story to [email protected].

Dr. Wilson's webinar "A Surgeon's Approach to Schwannomas and Neurofibromas" takes place this Wednesday night! Join us at 7:00 PM ET/5:00 PM PT for this free educational event. Register and learn more here: www.nfnetwork.org//webinar-a-surgeons-approach-to-schwann/

In just a few short days, the NF Hope Concert goes virtual! Join us on Monday, May 4th at 7:00 PM ET for an evening honoring our NF community with exclusive per...formances, interviews, and appearances from the amazing cast below. Together we can make a difference in the lives of thousands! For more information on how to join, click here: www.nfnetwork.org/inaugural-nf-hope-livestream-concert/

On #NationalSuperheroDay, the NF Network sends a heartfelt thank you the incredible heroes working on the front lines during the pandemic. We thank you for your service and we stand behind you.