MECFS Collaborative Research Center at Stanford University

An update from Ron Davis on the Metabolic Trap Hypothesis on ME/CFS. Please subscribe to our youtube channel to be alerted of future video updates! https://youtu.be/KegawiZ5-KQ

A summary of the ME/CFS Working Group at Stanford Meeting September 8-10, 2021 by Ronald W. Davis, PhD, and Janet L Dafoe, PhD This was a great meeting and showed a lot of activity and progress in ME/CFS in an ever-growing number of groups. Researchers presented unpublished and often preliminary results. This style of scientific meeting can greatly accelerate research because scientists learn new information much earlier. It can often take a year or more to get a research pa...Continue reading

A list of those who participated in this year’s virtual ME/CFS Working Group Meeting! An amazing group of brilliant minds collaborating and discussing the future of ME/CFS research.

Take a look at the agenda from our annual ME/CFS Working Group Meeting. We had an exciting list of speakers and even better discussion!

https://doctorswith.me/founding-father-of-human-genome-pr/

Last week, the ME/CFS Collaborative Research Center at Stanford held its annual international Working Group meeting over Zoom. Janet Dafoe has provided the foll...owing update: "The meeting was the best ever. Scientist after scientist with groundbreaking Molecular Research. Great discussions. Collaborations forming. We will put out the agenda and the names of all the participants soon. It really felt like progress. Putting puzzle pieces together."

Today is the first day of our three day annual international Working Group meeting held virtually on Zoom. With over 100 scientists attending from around the world we are excited for the collaboration and updates on research.

Ron Davis has issued a powerful statement on the pausing of #NICE guidelines. From the desk of Ronald W. Davis, PhD, Chair of OMF's Scientific Advisory Board: ... NICE has abruptly paused the publication of it’s new guidelines for ME/CFS, arguing that those who are treating patients need to agree with the guidelines. This is a false argument. Medical advice must follow the evidence and not personal beliefs or political positions. If doctors treating ME/CFS patients do not agree with evidence based guidelines, they should not be treating these patients. This is why we have guidelines. When guidelines contain treatments that don’t work, or are harmful, then the guidelines should be rejected. We must have faith that the guidelines are in the best interest of the patient. NICE has completed their objective scientific review. It is a travesty that NICE is being influenced by people with vested interest in maintaining their beliefs in treatments that have long been shown to lack evidence supporting them and have been shown to be harmful to patients. If NICE does not stick to their mission of unbiased evidence based guidelines, then it will lose its credibility. It is time for the UK to join the rest of the scientific community and publish guidelines that are consistent with the evidence. Their influence is crucial, and every day that the old guidelines stand, physicians all over the world continue to recommend inappropriate and harmful treatment for ME/CFS patients.

For this #MECFSAwarenessDay we’d like to share this video, made by patient and #MECFS advocate, Whitney Dafoe. https://youtu.be/iWqJwAUcmYE

Here is another short teaser article for the full PeopleMag article that hits news stands today! https://people.com//renowned-scientists-son-describes-hi/

People magazine articles on ME/CFS! I just found out that this is one of two or three online teasers to get people to buy the print version which is much more extensive that is going out today. Another online teaser will be going up in a day or two.

For more on Ron's battle to help his son survive, pick up the latest issue of PEOPLE on newsstands Friday. https://people.com//scientist-ron-davis-son-chronic-fatig/

Part 2 of Ron Davis' March research update is here! Click the link below to view and to access our youtube channel. https://youtu.be/t-zqjQdGsyY