HSAN1E Society

HSAN1E Society’s mission is to create awareness of HSAN1E, to provide emotional support to families affected by HSAN1E and help facilitate research through education. Your contribution on this #GivingTuesday will help us continue our mission. Click on the link to donate today. https://hsan1esociety.org/donate-to-hsan1e-society/

#GivingTuesday is just a few days away.

HSAN1E Society is so Thankful for all our HSAN1E families and supporters.

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https://hsan1esociety.org/registry/

Hi everyone. I just wanted to post a little update on the data collection for the HSAN1E Patient History database. As a reminder, the data collected as part of this project is invaluable and essential for future research and treatments of HSAN1E. Thus far, patients and caregivers from California, Oregon, Georgia, and as far away as Italy have shared their patient histories. A big thank you to everyone who has participated so far. BUT, let's make a BIG push to collect even more BEFORE the end of 2020. Let's get something good out of this crappy year! -Matt Collins, HSAN1E Treasurer.