Cayenne Wellness Center and Children's Foundation

Town Hall: Day 2

Town Hall Meeting about Gene Therapy and Gene Editing in Sickle Cell as well as BlueBird Bio Announcement.

Watch on our facebook page or register on eventbrite to join on zoom-- > http://ow.ly/3U2h50DI6TE

After joining us tonight and tomorrow at our Town Hall at 4pm PST/7pm EST (Click here--> http://ow.ly/3U2h50DI6TE to register on Eventbrite!), be sure to sign up for CPAD’s 3rd Annual Sickle Cell Disease Forum at http://ow.ly/YRo750DI6TB

Have you donated yet? Today's the last day of 2020 to make an impact on the lives of those with sickle cell here in California. Donate today: https://buff.ly/3n86vAf

You heard it here first! Support groups for 2021! Visit this post the day of your support group to find the LINK https://us02web.zoom.us/j/87486706016

Your donation will help to provide education and support services for persons living with sickle cell disease in California. You may direct your donation to our general programs, support groups, SCD educational seminars, and client assistance programs. https://buff.ly/3n86vAf

Do you want to make $150? Are you 16-22 years old? Do you have SCD? We are piloting a new program to increase readiness and success of transition from pediatric to adult care! https://docs.google.com//1FAIpQLSeYAatJt_N_WKy_8h/viewform <- click on the link to apply and share with everyone you know who could benefit from this!

Tuesday October 27th at 6pm is the San Diego Sickle Cell Disease Support Group Meeting. Join us: https://bit.ly/SanDiego_SCD_Support_Group

Join us next Tuesday for the San Diego Virtual Sickle Cell Disease Support Group Meeting https://cts.vrmailer1.com/click

Today at 6pm PT / 9pm ET. Join here: https://bit.ly/Fresno_SCD_Support_Group

If you weren’t able to join us during last week’s incredible support group where we had guest speaker, Dr. Jamie Smutko of Global Blood Therapeutics (GBT), you’ve got not one but TWO opportunities to hear from her this week! Join us virtually tonight at 6:30pm or this Thursday 10/15 at 6pm. Tuesday 10/13: https://bit.ly/AV_SCD_Support_Group... Thursday 10/15: https://bit.ly/Fresno_SCD_Support_Group See you tonight! Or Thursday :-) #sicklecell #sicklecellawareness #sicklecellwarrior #sicklecellanemia #sicklecelldisease #sicklecellmatters #sicklecellstrong #sicklecellfighter #sicklecelltrait #sicklecelladvocate #sicklecellsurvivor #sicklecellwarriors #sicklecellsupport

Sickle Cell Community Consortium is partnering with @BeTheMatch to save black lives. Dakhyion is searching for a life-saving match and YOU could be his cure. @BeTheMatch Join now to save a life: Text SC3 to 61474 #WeAreTheCure #BeTheMatch #SickleCell #BloodCancer #BlackLive

Happening today at 3pm PT/ 6pm ET Sickle Cell Community Consortium and Be The Match will be hosting We Are the Cure: Debunking the Myth. #sicklecellmatters Join the conversation here: https://us02web.zoom.us/j/88299588398

Join us today at 6pm PT and hear from Jamie Smutko of GBT as she talks about sickle cell disease treatments. Jamie is the Global Blood Therapeutics (GBT) Director of Medical Science Liaisons for the West Coast. A scientist by training, Jamie’s primary responsibility is to act as a bridge between the sickle cell medical community and GBT by addressing scientific and clinical questions from sickle cell healthcare providers. Here's the link to join: https://bit.ly/2BhggcE

September is Sickle Cell Awareness month and we spend a lot of our time talking and spreading awareness. But this month we have an action we’d like supporters to take. Register for Be The Match. ESPECIALLY if you have African Ancestry. Only 4% of the registry has Black Donors. We could have warriors that have been approved for bone marrow/stem cell transplants to cure their sickle cell. But they are waiting for a match. ... Joining Be The Match increases the chances of one of our warriors getting a second chance at life. It’sa short application, and you just need to be 18-45 years old. You’ll get a cheek swap kit in the mail and send it back. That’s it! So don’t hesitate, text the number to help save a life. #wearethecure Comment I signed up when you’re all done!

Join Us for a Virtual Support Group Meeting on Thursday October 1st at 6pm https://cts.vrmailer1.com/click

How to Apply for GHPP | Genetically Handicapped Persons Program https://cts.vrmailer1.com/click

Thank you to all of our sponsors for helping us present this week's #SickleCellDisease Educational Seminar. - CSL Behring - Vertex/Crispr - GBT... - bluebird bio - Emmaus - Terumo BCT - Imara - Medunik - Sickle Cell Community Advisory Committee - Dr. Bronner - Novartis See more

It's been a truly amazing three days. Thank you to everyone who attended, sponsored, planned, supported, and participated in the 12th Annual #SickleCellDisease Education Seminar. You made this possible. Transitioning to a virtual event was a leap of faith and we're so proud of how it turned out. We hope you enjoyed it. See you next year.